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Jessie Hayman launches her Jessie Jars campaign

Jessie Hayman is 12 years old. In August Jessie decided she would start collecting 1p and 2p coins in a jar to help her mum, Kerry, who had been diagnosed with EHE. She also started asking others to help and soon had friends, neighbours, school friends and local businesses all enrolled. And so the Jessie Jars campaign was born. If you want to make a donation, or start a Jessie Jar to help Jessie in her quest, then please do. You can see Jessie's campaign page at:

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Nicola talks about EHE on BBC Radio Bristol

Nicola's first 2 years of parenthood have been overshadowed by her EHE rare cancer diagnosis. Nicola appeared on BBC Radio Bristol on 12th May to help raise awareness of EHE, and to support EHE research. If you would like to support Nicola and rare cancer research then you can do this easily by making a donation through Nicola's Justgiving page at:

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Milly Simmie raises funds for EHE rare cancer research

Milly Simmie, diagnosed with EHE the day before her wedding in 2015, was able to tell her story on Radio 5 Live on Monday 18 th April. Since her diagnosis, Milly, and her husband Alastair, have thrown themselves into fundraising to support critical research into EHE rare cancer. If you want to support Milly, and rare cancer research, you can donate on Milly Justgiving page at: