Epithelioid Haemangioendothelioma (EHE) is a very rare form of vascular sarcoma. Because it is very rare, there is much we don't yet know about it. But there are some key things we do know. For example, the gene translocation that is specific to EHE was discovered in 2011 by the same research team we help to fund today.

We are continuing to gather vital data from our worldwide membership of EHE patients. These data are invaluable to the medical and research scientists who are working to understand and treat this rare cancer. We hope that new treatments and targeted drug regimens are not far away, so do not think that EHE is a lost cause. Nothing could be further from the truth.

In this section, you will find an introduction to EHE, including facts about the disease and our current understanding of it. You will also find links to other sources of information that we hope will be of use.