News

In this section you will find news reports about the EHE Rare Cancer Charity, what we have been engaged in, what our members have been doing in the UK, and indeed stories relating to the worldwide membership of the EHE sister charities. We hope that you find them interesting. If however you are looking for specific information and cannot find it here or on the website, please let us know what you need through our CONTACT page and we will get back to you.

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EHERCC publishes its Annual Report and Financial Statements for 2017

15 August 2018

The EHERCC is delighted to be able to confirm that its Annual Report and Financial Statements for 2017 have been issued, following completion of the Independent Examiners review at the end of July. Jeff Collins noted “2017 was another very good year for the charity. We received unbelievable support from so many people, raising over £170,000 for EHE research”. Kate Hooper was equally delighted with the research achievement through the year. “Dr Rubin’s research progress was exciting” noted...

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EHE4 ride in the Amstel Prudential RideLondon 100 Team Event

29 July 2018

The 29th July was the date for the 2018 Prudential RideLondon 100 cycling event, and the EHERCC were delighted to be represented by a four-man team in the Amstel Team event. Dominic Steinitz, Scott Milligan, Mark Schaffer and Nik Brown had all been in intense training. Fears of ultra-high temperatures seen in the preceding month turned out to be unfounded as race day dawned with rain and much lower temperatures. This did not however put off our determined quartet who all completed the race...

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Zebrafish research project started in Sheffield

19 July 2018

The EHERCC is delighted to announce the start of a collaboration between the Bateson Centre at the University of Sheffield and Dr Rubin to explore the feasibility of creating a valid EHE model using Zebra Fish.

Epithelioid haemangioendothelioma is a rare intermediate grade vascular tumour. The driving molecular abnormality found in the majority of EHE is the TAZ-CAMTA1 fusion protein. Understanding TAZ-CAMTA1 biology is key to developing novel treatment options for EHE. However,...

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Dr Rubin’s drug screening assay is progressing well

30 June 2018

Dr Rubin’s drug screening study is going well. His team successfully transferred the screen to the Case Western Reserve Drug Screening Core where they screened a 1400 compound repurposed chemotherapy library and a 50,000 molecule Chembridge drug-like compound library. They are in the process of running compounds identified in the primary screen through their pipeline to focus on the most promising molecules for drug development. Dr Rubin is optimistic that this approach will yield active...

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A long walk for EHE!

29 June 2018

At the end of June Nicola Henderson’s very close friend Rachel Undy and her work colleague Jim Babington were taking on the Cotswold Way Challenge for EHE. This is a 100km walk across rough and hilly terrain in the UK. The weather was also very hot making it an extra tough challenge, with Rachel suffering severe heat stroke! But helping EHE drove both Jim and Rachel on. Jim noted “ What surprised me was how hard it was mentally to keep moving during the dark hours when every step was...

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EHE well represented at ASCO 2018 in Chicago

10 June 2018

The EHE Foundation was well presented at the 2018 ASCO Conference in Chicago by Jane Gutkovich (Director of Research), Lisa De Young (Director of Patient Liaison Services), and Denise Robinson (Research Manager). We were also delighted to see many of our Advisory Board members and other sarcoma specialists present at the EHE meeting organised by the EHE Foundation. A lot of ground was covered at the meeting, with even more EHE issues discussed at different venues over the duration of the...

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The Mekinist (trametinib) trial moves to Phase 2

10 June 2018

Dr Rubin was delighted to be able to report that the clinical trial of mekinist has moved into phase 2. “ They said we couldn’t do it but we did. Thanks to Dr Scott Schuetze (University of Michigan) and the good people at SARC, we successfully launched the first prospective clinical trial of EHE patients. The trial is examining the effect of trametinib, a MEK inhibitor as a treatment for progressive EHE. MEK is a signal transduction molecule that is activated as a result of TAZ-CAMTA1...

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Jessie Jars, a simple way to raise funds

28 April 2018

In 2016 Jessie Hayman asked friends and family to start collecting small change in jars and donate it to EHE – and so Jessie Jars was launched. Jessie is still progressing with her campaign, two years later, as you can see in these photos posted during our April fundraising month. She has raised £186 since January, which is amazing. Here is Jessie with her cash all bagged, ready for the bank. We would love to see others doing the same.

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Team Hayman on the march!

25 April 2018

Team Hayman’s 5k walk in April in support of Kerry saw a huge increase in turn out. “ Last year there were 8 of us. This year there was over 40 of us. I do truly have the best of friends. ” Team Hayman raised an amazing £1,182 for EHERCC which is really fantastic. We send them all our congratulations and thanks.

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Isabelle remembered with Ibiza 4 Day Challenge

22 April 2018

Andrew Mitchison takes on four day challenge in memory of Isabelle

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