News

In this section you will find news reports about the EHE Rare Cancer Charity, what we have been engaged in, what our members have been doing in the UK, and indeed stories relating to the worldwide membership of the EHE sister charities. We hope that you find them interesting. If however you are looking for specific information and cannot find it here or on the website, please let us know what you need through our CONTACT page and we will get back to you.

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EHEAwesome40 rock in the 2021 London Landmarks Half Marathon

1 August 2021

After its cancelleation in 2020, we were all delighted when it was confirmed that the London Landmarks Half Marathon would go ahead on 1st August 2021.

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London Landmarks Half Marathon is back on!

15 June 2021

After the cancellation of the event in 2020, we are delighted to be able to confirm that the London Landmarks Half Marathon will be taking place this year!

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Nicola is on the march

8 May 2021

EHE patient and transplant recicipient, Nicola Henderson, decided she has had enough of lock down. Fully vaccinated, Nicola set out on a long walk to combat the stress and anxiety of the past 18 months.

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Collaborative research underway in Europe

1 May 2021

Collaborative research looking to identify EHE biomarkers is underway

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Rowing for research

30 April 2021

Tamzin Jones once again has led the way in raising funds for research while supporting a close friend diagnosed with EHE.

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UK National EHE Biobank goes live!

20 April 2021

The National UK EHE Biobank is now open and will be collecting tissue, blood and fluid samples to support future EHE research.

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Zebrafish – one more year?

10 April 2021

After a focused by frustrating first two years, the EHERCC has agreed to extend its zebrafish funding by one more year, to allow the team to test some promising new approaches.

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ESMO EHE Consensus paper is completed

25 March 2021

ESMO EHE Consensus Paper nears completion.

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Dr Rubin leads team that engineers EHE mouse model

25 February 2021

Dr Rubin's team present their EHE mouse which is an extraordinary analogue of the human form of the disease.

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Mariana continues European engagement

31 January 2021

Mariana Coutinho, an EHE patient in Portugal, continues to grow EHE awareness in Europe

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