News

In this section you will find news reports about the EHE Rare Cancer Charity, what we have been engaged in, what our members have been doing in the UK, and indeed stories relating to the worldwide membership of the EHE sister charities. We hope that you find them interesting. If however you are looking for specific information and cannot find it here or on the website, please let us know what you need through our CONTACT page and we will get back to you.

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Boot Camp Commandos are on the march!

6 February 2022

The awesome Boot Camp Commandos do it again, this time have raised over £8,000 for the EHE research with their fantastic half marathon log-carry

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RideLondon is back on

8 January 2022

The RideLondon 100 event is back on in 2022, but this time the 100 mile course will be through Essex

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Giving Tuesday Matched Funding Campaign successful

3 January 2022

Once again a wonderful donor agreed to match funds raised by our supporters between Giving Tuesday and the end of the year, up to £10,000

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EHE Facebook page continues to grow

31 December 2021

The EHE global Facebook pages continue to grow, connecting a worldwide EHE community

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Biobank is up and running

28 December 2021

We are proud to have played a key role in the set-up and launch of the UK National EHE Biobank

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An exciting new trial of a TEAD Inhibitor

15 December 2021

We are excited by the forthcoming clinical trial of a new TEAD inhibitor, as more fully described in this article

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Another great charity lunch

12 December 2021

Sarah Medwin holds her annual charity lunch in aid of EHE research

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2022 EHE360 International Conference

10 December 2021

The EHE 360 international scientific symposium and patient conference is just around the corner!

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World’s first EHE prospective patient registry

5 December 2021

The world's first ever EHE patient registry is being launched in Europe, led by the wonderful team at INT in Milan

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London Landmarks Half Marathon set for 3rd April

30 November 2021

The London Landmarks Half Marathon will be on 3rd April and we have 40 runners taking part

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