Dr Rubin's team present their EHE mouse which is an extraordinary analogue of the human form of the disease.
The EHE Foundation in the USA organises the first ever international conference focused entirely on EHE
The EHE Group issues its third quarter 2019 edition of The Pledge.
The EHE Group issues its fourth quarter 2019 edition of The Pledge.
EHE Masquerade Ball and #EHErelayraisers together raise £11,500 for EHE research.
Allana Parker and her wonderful friends celebrate the end of their marathon replay with their own EHE Masquerade Ball.
Adrianna's story is picked up again by two local papers in her area.
Nicola Henderson and Leanne Woodruff emphasise the importance of social distancing for people in the 'most at-risk' category.
The EHE Foundation in the USA is invited to join the Rare As One Network, part of the Chan Zuckerberg Initiative.
The EHE Group issues its second quarter edition of The Pledge.
EHE Rare Cancer Charity (UK)
23 Geneva Road
Registered charity: 1162472
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