EHEAwesome40 rock in the 2021 London Landmarks Half Marathon
After its cancelleation in 2020, we were all delighted when it was confirmed that the London Landmarks Half Marathon would go ahead on 1st August 2021.
Nicola is on the march
EHE patient and transplant recicipient, Nicola Henderson, decided she has had enough of lock down. Fully vaccinated, Nicola set out on a long walk to combat the stress and anxiety of the past 18 months.
Rowing for research
Tamzin Jones once again has led the way in raising funds for research while supporting a close friend diagnosed with EHE.
London Landmarks Half Marathon is back on!
After the cancellation of the event in 2020, we are delighted to be able to confirm that the London Landmarks Half Marathon will be taking place this year!
UK matched-funding campaign raises over £20,000
Our matched-funding campaign focused around Giving Tuesday helps raise over £20,000 for EHE research
Italy goes live!
Italy launches the first EHE not-for profit in Europe.
A surprise for a mother
Conor and his friends combine to raise funds for EHE research, and support Conor's mother in the process
2021 Wall Calendar is a great success
Anna Wydro and EHERCC produced the first EHE wall calender which was purchased by suporters all over the world, bringing greater awareness of EHE while raising funds for EHE research.
Donna and Amy raise over £500
Two close friends combined through October to raise funds for EHE research and at the same time support their old friend, Allana Parker.
A Christmas campaign
Allana Parker is happy to front an important campaign, andn in so doing, bring greater awareness of EHE
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