News: Medical

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Nicola is on the march

8 May 2021

EHE patient and transplant recicipient, Nicola Henderson, decided she has had enough of lock down. Fully vaccinated, Nicola set out on a long walk to combat the stress and anxiety of the past 18 months.

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Collaborative research underway in Europe

1 May 2021

Collaborative research looking to identify EHE biomarkers is underway

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UK National EHE Biobank goes live!

20 April 2021

The National UK EHE Biobank is now open and will be collecting tissue, blood and fluid samples to support future EHE research.

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ESMO EHE Consensus paper is completed

25 March 2021

ESMO EHE Consensus Paper nears completion.

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EHE360 Conference: a worldwide first

30 January 2021

The EHE Foundation in the USA organises the first ever international conference focused entirely on EHE

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ESMO (European Society of Medical Oncology) holds major EHE event

8 December 2020

ESMO held a virtual meeting to develop Consensus and Guidelines for EHE Treatment. Bringing together over 90 clinical and research specialists, this was the single largest gather of EHE-experineced professionals ever held.

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The importance of collecting EHE tissue and fluid samples

28 March 2020

EHERCC is excited to be able to report that the EHE natioanl biobank is ready for ethics approval, afterwhich it will go live!

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YAP, TAZ and TEAD Workshop

24 June 2019

EHERCC helps fund UK participation in important US workshop attended

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Excellent participation in PROM QOL study

10 September 2018

On September 10 th Marije Weidema, one of the researchers behind the PROM Quality of Life Study for EHE Patients being undertaken in Holland updated the charity with the excellent news that 114 patients have taken part in the study by completing the online questionnaire. This is quite a milestone for such a rare sarcoma, involving participants across Europe, Asia, Australasia and North and South America. We now await the analysis, but in the meantime want to register our thanks for all our...

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NanoKnife and IRE Ablation

9 January 2018

EHERCC initiates discussions in the UK about IRE (NanoKnife) ablation for EHE

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