Excellent participation in PROM QOL study

node leader
10 September 2018

On September 10th Marije Weidema, one of the researchers behind the PROM Quality of Life Study for EHE Patients being undertaken in Holland updated the charity with the excellent news that 114 patients have taken part in the study by completing the online questionnaire. This is quite a milestone for such a rare sarcoma, involving participants across Europe, Asia, Australasia and North and South America. We now await the analysis, but in the meantime want to register our thanks for all our members who took the time to complete the questionnaire.

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