Isabelle's page!

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27 November 2017

A key reason why the UK Giving Tuesday campaign was so successful was because of the unbelievable support for a very special young lady, Isabelle. Fighting EHE, Isabelle and her family wanted to tell her story to help others in the future.

As some of you will know, 11 months ago our world was blown apart when our 17 year old daughter Isabelle, following two years of increasing neck pain, was diagnosed with an extremely rare cancer epithelioid haemangioendothelioma (EHE for short). Instead of enjoying friendships, worrying about end of school exams and planning her future life after school, she was thrust into a world of hospitals, IV drips, pain and fear. 

In March 2017 she underwent major surgery to her neck and spine. From May-July she received radiation and proton treatment which removed the cancer but left her virtually unable to swallow. In August she started having agonising chest pain, only to then be told the cancer was now in her left lung. As a result in September she started receiving aggressive chemo, which has led her to spend weeks in hospital due to the side effects and numerous complications. In short, to quote Isabelle, ‘life sucks’.”

Isabelle is continuing to fight her EHE with extraordinary bravery. Her story touched many, and as is often the case, with little they can do, her friends and family supported her fundraising with unbelievable generosity. Individuals, companies, her school and members of the public all joined her JustGiving campaign in October. It is a sign of their love and admiration for her that the campaign is continuing today, and has now gone past £64,000. We cannot thank Isabelle and her family enough for being prepared to share her story in a way that has and will continue to make a difference for EHE patients in the future. And of course we send her our love and very best wishes as her battle continues.

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