The Connective Tissue Oncology Society (CTOS) held its 2016 annual conference in Lisbon, Portugal between the 9th and 11th November. This is one of the largest gatherings of sarcoma specialists in the world each year. The conference was attended by Hugh Leonard, Chair of Trustees of EHERCC, and Jane Gutkovich, VP Research of the EHE Foundation in the USA. Jane and Hugh attended a number of key meetings at CTOS, with research and clinical specialists, to discuss a wide range of issues relating to EHE.
“It was wonderful to have the opportunity to meet a number of the research and oncological experts that are helping fight EHE” commented Hugh Leonard. “Whether they are conducting research into EHE or helping us by being on one of our advisory boards, it was great to see their passion and drive first hand”. Hugh was also impressed by the interest shown in EHE. “The combination of the rarity of the disease, its unique characteristics, and our social media worldwide reach, all seemed to combine and create interest from many. It made me realise that we really can make a difference, and that many people are keen to help us”.