News

In this section you will find news reports about the EHE Rare Cancer Charity, what we have been engaged in, what our members have been doing in the UK, and indeed stories relating to the worldwide membership of the EHE sister charities. We hope that you find them interesting. If however you are looking for specific information and cannot find it here or on the website, please let us know what you need through our CONTACT page and we will get back to you.

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Just Live beanie sales start

15 March 2018

New EHE "Just Live" beanie hats designed, purchased and for sale

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Joy Charitable Trust supports EHE research

17 February 2018

Following introductory meetings with Hugh Leonard, Chair of Trustees, the charity was delighted to receive a generous donation from the Joy Charitable Trust in support of EHE research.

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An ‘Oar-some’ challenge

9 February 2018

Brother of EHE patient takes up increbible challenge in support of EHERCC

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Rix & Kay continue their wonderful support

31 January 2018

Local solicitors’ firm supports one of their staff with ongoing support for EHERCC

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St Helen’s Church barn dance a huge success

27 January 2018

Local church supports EHERCC and a local family with an amazing barn dance

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NanoKnife and IRE Ablation

9 January 2018

EHERCC initiates discussions in the UK about IRE (NanoKnife) ablation for EHE

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Therapeutic drug screening progresses

30 December 2017

Exciting progress with Dr Rubin’s therapeutic drug screening

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Mekinist drug trial progresses

29 December 2017

Clinical trial of Mekinist (Trametinib) has impressive enrolment in USA

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EHE mouse model in final stages

29 December 2017

Dr Rubin and his team make progress with EHE mouse model

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Analysis of EHE genetic mutations continues

29 December 2017

Dr Rubin begins to identify secondary gene fusions in EHE

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