News

In this section you will find news reports about the EHE Rare Cancer Charity, what we have been engaged in, what our members have been doing in the UK, and indeed stories relating to the worldwide membership of the EHE sister charities. We hope that you find them interesting. If however you are looking for specific information and cannot find it here or on the website, please let us know what you need through our CONTACT page and we will get back to you.

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The Mekinist (trametinib) trial moves to Phase 2

10 June 2018

Dr Rubin was delighted to be able to report that the clinical trial of mekinist has moved into phase 2. “ They said we couldn’t do it but we did. Thanks to Dr Scott Schuetze (University of Michigan) and the good people at SARC, we successfully launched the first prospective clinical trial of EHE patients. The trial is examining the effect of trametinib, a MEK inhibitor as a treatment for progressive EHE. MEK is a signal transduction molecule that is activated as a result of TAZ-CAMTA1...

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Jessie Jars, a simple way to raise funds

28 April 2018

In 2016 Jessie Hayman asked friends and family to start collecting small change in jars and donate it to EHE – and so Jessie Jars was launched. Jessie is still progressing with her campaign, two years later, as you can see in these photos posted during our April fundraising month. She has raised £186 since January, which is amazing. Here is Jessie with her cash all bagged, ready for the bank. We would love to see others doing the same.

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Team Hayman on the march!

25 April 2018

Team Hayman’s 5k walk in April in support of Kerry saw a huge increase in turn out. “ Last year there were 8 of us. This year there was over 40 of us. I do truly have the best of friends. ” Team Hayman raised an amazing £1,182 for EHERCC which is really fantastic. We send them all our congratulations and thanks.

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Isabelle remembered with Ibiza 4 Day Challenge

22 April 2018

Andrew Mitchison takes on four day challenge in memory of Isabelle

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2nd Annual EHE Quiz Night a great success

21 April 2018

Another fantastic quiz night raises funds for EHERCC

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Rowing the Atlantic for EHE Research!

20 April 2018

Sarah Medwin’s son Charlie Medwin is raising money for EHE by rowing across the Atlantic next year in the ‘All Oar Nothing’ challenge. The team of four rowers are each supporting a different charity, with Charlie supporting EHERCC as his brother Harry has EHE.

As you can imagine, rowing the Atlantic is not an event that can be taken on without huge amounts of training. The All Oar Nothing team have decided to integrate their training regime with their fundraising strategy, and their...

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EHERCC first group run

25 March 2018

21 supporters run the London Landmarks Half Marathon for EHERCC

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Record gathering of EHE Patients

25 March 2018

Largest single gathering of EHE patients yet meet in London

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Just Live beanie sales start

15 March 2018

New EHE "Just Live" beanie hats designed, purchased and for sale

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Joy Charitable Trust supports EHE research

17 February 2018

Following introductory meetings with Hugh Leonard, Chair of Trustees, the charity was delighted to receive a generous donation from the Joy Charitable Trust in support of EHE research.

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