News

In this section you will find news reports about the EHE Rare Cancer Charity, what we have been engaged in, what our members have been doing in the UK, and indeed stories relating to the worldwide membership of the EHE sister charities. We hope that you find them interesting. If however you are looking for specific information and cannot find it here or on the website, please let us know what you need through our CONTACT page and we will get back to you.

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Q3 2016 edition of The Pledge published

10 October 2016

EHE Group issue the 6 th edition of the Pledge for Q3 2016

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Mark Henderson sky dives for Nicola and EHE

8 October 2016

Mark Henderson, whose wife Nicola was diagnosed with EHE in 2014, took part in his first ever sky dive to raise over £3,600 for EHE research.

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Jessie Jars are launched

22 September 2016

Jessie Hayman launched her own campaign to raise funds by asking people to collect their 1p and 2p coins for EHERCC.

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Auction of Promises a huge success

18 September 2016

Tamzin Jones holds Auction of Promises for EHERCC

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EHERCC files its 2015 Annual Report

13 September 2016

EHERCC files its Annual Report and Financial Statements with the Charity Commission

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Charity fundraising passes £250,000

17 July 2016

EHERCC's fundraising performance has exceeded expectations, passing £250,000 in only ten months.

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Dr Stacchiotti publishes EHE paper

12 July 2016

Italian oncologist, Dr Silvia Stacchiotti, has published a paper summarising the results of a retrospective analysis of the effects of Sirolimus on EHE.

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EHE features at ASCO 2016

8 July 2016

Jane Gutkovich, the USA EHE Foundation Research Director, attended the ASCO 2016 conference in June and continued to discuss and promote EHE with participants.

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EHE discussed at ASCO 2016

8 July 2016

Jane Gutkovich, the USA EHE Research Director, attended the ASCO 2016 conference in June and continued to discuss and promote EHE with participants.

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Q2 2016 edition of The Pledge published

7 July 2016

EHE Group issue the 5th edition of the Pledge for Q2 2016

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