Resources

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Diagnosis Case 1

Jane was eventually diagnosed with EHE in 2005. This is the story of the diagnosis process she went through.

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Robert's Story

Robert's wife Jane was diagnosed with EHE in 2005. Here is his story.

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Penny's Story

Helen is Penny's mother. This is her story about her daughter's battle with EHE.

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Milly's Story

Milly is 29 and was diagnosed with EHE in Juky 2015, the day before her wedding. This is her story.

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Nicola's story

My name is Nicola; 2014 was the best and worst year of my life all bundled into one. I become a Mummy and I got diagnosed with a very rare cancer. Here is my story.

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Beverley's story

Beverley is 44 and was diagnosed with EHE in 2014. She has undergone major liver surgery as a result. This is her story.

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Ron's Story

Ron's daughter Nicola was diagnosed with EHE. This is Ron's Story of 'Just Living'

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Diagnosis Case 2

Beverley was diagnosed with EHE in 2014. Like many she endured a confused and frightening diagnosis, as described here.

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