Being told “you have cancer” is a traumatic experience. Being told your cancer is so rare that doctors cannot tell you what to expect makes the diagnosis even more frightening. One such cancer is Epithelioid Haemangioendothelioma (EHE), an indiscriminate vascular sarcoma cancer that can occur at any age and is often aggressive in children and young adults. It is this cancer that we are focused on and determined to beat.

We have three core objectives. We are passionate about all three because we believe offering support to people living with EHE, while promoting research and understanding are the best way to combat this disease.

Our objectives are:

  1. to support patients wherever they are in the world;
  2. to promote, fund and direct research into EHE;
  3. to act as advocates for greater awareness of, and care for, EHE.

In this section you will find further information about these objectives. If you decide you would like to help in our battle against EHE, please go to our HELP US section. We will be very grateful for whatever assistance you can provide.